Here are some words from Barb.
Greetings,
I thought it was about time for another update. The past few days have been a little difficult. Bob has hit a couple of rough patches since he received his transplant on Monday. At the time of transplant, the surgeons had elected to leave his chest open and support his new lungs and his heart on a system called ECMO. On Wednesday, he was taken backand his chest was closed and the ECMO was removed His lungs were pink and soft and working well. His heart was having difficulty adjusting. It had been working so hard to push oxygen into his lungs ,so like any muscle ,the exercise had enlarged the right side. So basically, he ended up with a very tight situation in a very small chest cavity. He has a very small chest cavity due to his size, his age, and the disease. Closing the chest seemed to cause compression and a very unhappy heart. After working to try and get him back to a normal rhythm, the decision was made last night to re-open the chest. Today he seems to be doing better. He is still asleep and will be for several more days. They continue to monitor him closely.
This is an awesome facility and he is receiving such good care. You know that he is a fighter and will do whatever is asked of him. We knew going in to this that it would be a rough road. There would be ups and downs. We have not been disappointed. We are now 5 days from transplant
Thank you all for your support and concerns. I really enjoy reading your emails and all of the encouragement you send.I will try to keep you informed as best I can. I realize that when time goes by without news it can cause concerns so I will do my best.
Carolyn is working on a way so that you can access information and send messages. Hopefully, she will have it together soon.
Barb
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